Monday, June 30, 2014

Wrong Message Ellen

In case you missed it, the Ellen DeGeneres Show has asked the public to “Send us your bad sunburn photos!”  This is the photo they used as an example:


As a colleague of mine would say, from 50,000 feet, this seems funny.  I would equate the humor to someone writing “Dork” on a sleeping frat brother’s forehead.  Sure, it’s sophomoric humor, but it can be funny.

But in all honesty, this isn’t funny.  You and I both know that there is nothing funny about a sunburn.  One bad sunburn can significantly increase one’s chance of being diagnosed with skin cancer or melanoma.  Repeated sun exposure is even worse.  Of the top seven cancers, incidents of melanoma are rising while all others are declining.  Most skin cancer and melanoma can be attributed to UV radiation from the sun or tanning beds.  In short, sunburns are bad.  Very bad.

You might call me a hypocrite.  After all, I posted a blog a three years ago (almost to the day!) that made fun of “funny” sunburns.  Well, in all honesty, I was trying to showcase how improper sun screen application can result in sunburns.  Still, I used the words “every now and then I have to lighten things up” meaning that I thought the pictures in the blog were indeed funny.  In retrospect, they weren’t (although they still emphasize proper use of sunscreen). 

I do have a sense of humor.  Some would say I have a sick sense of humor that defies political correctness.  As I said before, from a distance, Ellen’s request seems funny…until you realize that some people may purposely subject themselves to “funny sunburns” so as to have their photo appear on TV.  This is what makes this so offensive to me.

If any sunburns are to be posted, let them be of sunburns that make attractive people look ridiculous. 


Make a statement that sunburns are not to be laughed at, but to be admonished with mutterings of “when will they ever learn?”  I would love to see a segment on Ellen start with such photos to cause the audience to laugh…and then show a picture such as one of these:



Imagine how the audience would grow silent.  Imagine how they would stop to think.  Imagine the message that could follow with important and substantial discussion about sun safety and melanoma.

Now THAT would put a smile on my face.

Thursday, June 26, 2014

Teaching Hope


In 2012, a teacher of Healthy Living at Lufkin Road Middle School in Apex, NC was battling melanoma.  Marti Capaforte wanted to keep her illness private, but a few of her colleagues approached her with an idea about a school-wide cancer awareness event.  Her co-workers wore purple t-shirts with the word “Hope” on the front, and Capaforte’s favorite saying on the back: “Have a great day on purpose!”  Students began participating in activities which inspired cancer awareness.  Posters on the facts and dangers of tanning beds and tobacco use adorned the hallways. 


Toward the end of the year, the students enjoyed field day, one of Capaforte’s favorite student activities that the staff chose to bring back.  This became the first “Hope Games.” 

Melanoma eventually claimed Capaforte’s life, but her message and inspiration live on.  A memorial garden sits in the front lawn of Lufkin Road Middle school and each year, students plant more trees in her memory. 


Sara DeMarco was one of Capaforte's friends/colleagues that first formed the Hope games.  Herself a melanoma and cervical cancer survivor, DeMarco continues to teach cancer awareness to her students (including my own children).  Due to an unusual amount of inclement weather and lost instructional time in the winter of 2014, the Hope Games had to be cancelled this past year with the hope of it returning in 2015.  However, DeMarco organized one week this past semester in her Healthy Living class that was still devoted to cancer awareness, including breast cancer, lung cancer (where all students signed a no smoking pledge), leukemia and melanoma.  Each day, my kids came home with new information to share with me.  Yes, even on melanoma day, my daughter (clad in her “Black is the New Pink” t-shirt) was excited to tell me about slip-slop-slap! 


The students also had the opportunity to give back and donate to the American Cancer Society.  Total donations added up to $1,467.84.  I’m proud to report that my kids’ track/pod donated the most per kid with a track donation of $208.


The fact that Marti Capaforte was stricken with melanoma is tragic.  However, her story has inspired one middle school in North Carolina to teach its students cancer awareness (including sun safety) and the joy of giving to help others.  Thanks to Ms. DeMarco and the rest of the staff for teaching my children (and many others) a very important lesson for life.


Saturday, May 31, 2014

Journey of a Tanning Ban Bill and the Role of the American Suntanning Association - A Wolf in Sheep's Clothing?

The Youth Skin Cancer Protection Act was introduced to the North Carolina House of Representatives in 2013.  The bill (HB18), similar to legislation across the country, would disallow persons under 18 to use tanning equipment if passed as a law.  Nearly every medical association supported passage of this bill.  Former tanning bed users who later developed skin cancer or melanoma spoke before the committees.  The Director of the Duke University Melanoma Center also spoke about the dangers of tanning equipment.  However, there was one very influential group that spoke against such a law…the American Suntanning Association.

When asked, Joe Levy who at the time represented the indoor tanning salon trade group called “Smart Tan Network, Inc.” stated that melanoma “does not have direct relationship with sunlight.  It is a complex relationship if at all.”  The ASA had also touted the supposed health benefits of UV rays such as vitamin D absorption, treatment for psoriasis, and treatment seasonal affective disorder.  Despite fact-based statements to the contrary by represented medical professionals, the legislators listened to the ASA with great interest. 

There was also more political-based discussion.  Tanning supporters claimed that parental rights would be violated by this law.  “Every parent has a right to decide what’s best for their children…not the government!”  (Of course, let’s ignore the age restrictions on cigarettes, alcohol, voting, driving, pornography…all imposed by government regulation).    

The bill passed by a House vote of 94 to 22, meaning that 22 bought into the ASA’s claims.  It was passed along to the Senate and subsequently entered committee purgatory within the Senate’s Committee on Rules and Operations.  This is the committee where bills go on hiatus waiting to be used as a bargaining chip to slide into controversial legislation or simply left to be forgotten.  Bill HB18 was introduced to this committee on March 21, 2013 and still sits there today as of May 30, 2014.  The American Suntanning Association may have lost the vote, but they seemed to have won the battle.

When I asked sponsors of the bill if they felt the battle had indeed been lost, they responded quite the opposite.  They stated that before the bill was introduced, they really didn’t know who would support or oppose the legislation.  Now that the initial debate had begun, the line had been more clearly established between supporters and detractors.  Even though the Senate had yet to discuss the bill, clear alliances existed between Senate and House members, so it was pretty easy to determine how a Senate vote might go.  With this knowledge, the sponsors now know who they need to convince to vote in favor of the bill.  This was fascinating insight into the political process, but I sadly felt that the bill had seen its last day…at least for a few years. 

But then the American Suntanning Association made a surprise move.  They dropped their opposition!

This opened the door to start campaigning anew.  The election-year “short session” has begun and the bill sponsors and other organizations have been pushing hard to the Committee Chair (Sen. Tom Apodaca…someone who opposed the bill in favor of “parental rights”) to forward the bill onto the Senate floor.  Senator Apodaca has stated that the Senate’s focus is on the state’s budget and doubted that this bill would be forwarded on.  However, the ASA’s retraction and recent tanning bed regulatory changes by the FDA have shown that this bill should pass with minimal resistance.  Let’s hope this is the case.

The American Suntanning Association’s reversal from HB18 opposition begs one question.  “Why?”
Joe Levy, now Scientific Advisor to the ASA, has stated that they want to have “high-level discussion on the risks and benefits of any UV exposure and for heightened responsibility both in the tanning market and in those who oppose UV exposure.”  Translation: they want real debate about the dangers of tanning swept under the rug.

According to Levy, people under 18 years old account for about 2 percent of the total tanning business.  To continue to fight legislation which is sweeping the country would cost the tanning industry thousands if not millions of dollars, far more than they would most likely lose in lost business to teenagers.  But I think there’s another reason.

When HB18 was introduced last year, it was not the top headlining piece of legislation, but it received its fair share of news coverage.  Any debated topic means better ratings for news broadcasts.  As a result, there was increased debate over the air and in online forums.  Awareness of tanning danger, skin cancer and melanoma was on the rise.  The more these dangers were expressed, the more people over the age of 18 started to listen.  The more they listened, the more they reconsidered the safety of tanning salons.  These were the people on whom the tanning industry relied for their business.  If adults started to shun the tanning beds, the industry would be in serious trouble.  So they changed their strategy.

The ASA is now supporting legislation to ban minors from tanning.  According to Mr. Levy, the ASA has helped pass such legislation in 7 states thus far in 2014.  They hope that North Carolina will be the next. 
Think about it.  Having no opposition to this bill means there will be no heated debate.  There will be no online forums.  There will be minimal media coverage at best.  It will have the much public interest and notice as a fictional bill to add additional brake lights to school buses.  It will simply…pass.

Passing this legislation is a good thing!  It is a very good thing!  The sponsors of this bill need to do exactly what they are doing and wave the ASA’s endorsement in the legislators’ faces in hope to get HB18 passed.  After that, some lives will be saved.  Skin cancer and melanoma rates will decrease.  There will be a positive impact on the cost of healthcare in that fewer dollars will be needed to fight these cancers.  But what will happen to the angelic and enlightened American Suntanning Association?

I predict the ANA will refocus their monies from fighting legislation to pushing the tanning industry on the over 18 crowd.  College towns will have an increase in tanning salons.  Specials on lotions and tanning sessions will be promoted on campus.  University girls will be reminded that having no tan before Spring Break is a fashion faux pas.  The wolf will shed its sheep’s clothing and the tanning industry will evoke a full frontal assault on the 20-somethings.  Sadly, many will buy into it all.


As I said, passing the Youth Skin Cancer Protection Act into law is important.  Middle school and high school students will be banned from tanning salons.  But this is not the end of the battle for those opposed to the tanning industry.  There is still need for parental responsibility.  Parents, schools and people like us need to explain to these kids why there is such a tanning ban.  We need to teach kids about sun safety and melanoma awareness.  We need to educate the children BEFORE the tanning industry gets their fangs into them after high school.  

Friday, May 16, 2014

Ticking Bomb?

Let me preface this post by stating again that I do not have melanoma.  Thank goodness that I have no clue as to how it feels to have melanoma or any skin cancer.  I did have a prostate cancer scare a few years ago (false alarm…twice), but that’s not really the same.  I cannot relate to what it feels like to live with cancer.  I can only surmise how it feels from the experiences that my brother scarcely shared and from what I read from others…and there have been so many who have shared.  Regardless of so much “data,” I still will never know until I get it.  And that’s what I fear…”getting it.”

I have lived “high risk” for various conditions for several years now.  I have an extensive family history of cardiovascular conditions, plus I take medication to keep my triglycerides and cholesterol from going through the roof.  I love my pizza, cheeseburgers and burritos.  I’m a heart attack waiting to happen.  When I saw a photo that my daughter recently took, I got scared.  I am not in shape…unless you call round or pear a shape.  I need to make some changes to make sure that heart attack never happens.  The truth is I CAN make such changes.  Other conditions may not be so easy.

As I mentioned above, I had a prostate cancer scare several years ago.  The doctor felt a lump during the good ol’ “digital exam,” so she referred me to the even longer-fingered urologist who agreed that indeed there was a lump where there shouldn't be.  A painful biopsy followed with an inconclusive diagnosis.  There was “something” in there and they needed another look.  So I had a second biopsy performed with more pain but better results.  The conclusion was that I didn't have cancer.  “But,” as the doctor told me, “you are high risk to get prostate cancer…probably in your 50’s.”  I’m 51 now.  Unlike my weight and general shape for better heart health, there’s not a lot I can do to make me lower risk regarding prostate cancer.  I take supplements (saw palmetto and licopene) that have statistical links to improved prostate health, but truly there is nothing more I can do except, well, get in better shape.  (See love of pizza above)

And then a few years ago, my brother Jeff was diagnosed with melanoma.  At the time, he told me that melanoma was “carried” between siblings because we grew up in the same environment, and probably the same type of sun exposure.  Yep, baby oil, iodine and Solarcaine for the after burn…that was our method.  You know Jeff’s story.  Mine has a happier continuation with no end written…yet.  I have moles aplenty and remain high risk due to my blonde hair and blue eyes.  I wrote a blog once about uncontrollable risk factors.  One statistic that caught my eye was that having two immediate family members with melanoma creates a near 100% chance of being diagnosed with melanoma.  That seemed unreal to me and I actually contacted the source from where I obtained this data.  Sure enough…100%!  Thank goodness I had only one family member who had been diagnosed with melanoma.

Until now.

I called my dad the other day and he gave me the rundown of his week.  A gathering with some friends one day, a check up with his cardiologist another day and an appointment with his dermatologist to get some spots removed.  Obviously, I asked him about the latter first.  He responded, “It’s just a couple pre-cancerous spots that I always have taken off.  Oh, and he wants to remove a melanoma off my back.”

“A what?  Do mean ‘carcinoma’?”

“Nope, it’s a melanoma.  The doctor said it was no big deal.” (My dad would tell me that a tornado was no big deal to keep me from worrying)

So my mind thinks of all the times I've written how early detection of melanoma results in 97% survival rate.  Many articles state that early detection leads to it being cut out and being “cured” of melanoma.  My mind focused on this as I logically agreed that it indeed was probably no big deal…especially if it was indeed caught early as my dad implied.  My heart admitted that I'm a little worried.  My gut screamed one other thing…”That’s the second family member…dammit!”

Obviously I’ll be talking to my dad soon.  Logically I’m not worried because he DOES visit the dermatologist often and if melanoma was detected, I’m confident it was caught early enough.  As for me, I know I take all the precautions I can against melanoma…now.  In my earlier years…not so much. 

Once again, I have another “high risk” tag placed upon me.  I've been here before.  This time however, it got my attention a little more than usual.

Wednesday, April 23, 2014

Campaign Season



It’s campaign season. 

Don’t fret.  I’m not talking about the cluttered signs at every intersection or endless political ads on television.  I’m talking about awareness campaigns.  And boy oh boy do we have some good melanoma awareness campaigns going on this coming May.

All of those in “Melanoma Nation” know that May is Melanoma and Skin Cancer Awareness Month.  We aren’t the ones that need to know…it’s the people that are NOT aware of the dangers of melanoma that need to know.  Luckily, there are some fairly high profile organizations trying to make everyone aware.

A few weeks ago, I mentioned that the American Academy of Dermatology held a teleconference to discuss their plans for May.  They plan to repeat their “Spot Skin Cancer” campaign but with an emphasis on melanoma.  Melanoma Monday (an AAD creation which occurs on May 5 this year) will be observed for an entire week.  Make sure you hash-tag the following key phrases to get the AAD’s attention during melanoma-related postings and tweets.  #MelanomaMonday  #melanoma  #SpotSkinCancer

Recently, L’Oreal Paris aligned with the Melanoma Research Alliance to launch their “It’s THAT worth it” campaign to emphasize that it’s worth applying sunscreen every day.  Yeah, it’s a pain to rub it in every day (and very two hours), but it’s THAT worth it.  Get it?  Good!  L’Oreal Paris has also offered to donate up to $250,000 to the MRA for every person that registers on their website (itsthatworthit.org) for the “Thunderclap.”  This will be a simultaneous tweet and post to all of YOUR contacts with a message about sun safety and melanoma awareness.  Imagine all the people who will receive a message of awareness at exactly 5:00 PM on May 20.  Visit their website at Itsthatworthit.org to register if you haven’t already.

The Melanoma Research Foundation is launching one of the more eyebrow-raising campaigns with their #GetNaked campaign.  This campaign encourages all to check your own skin regularly and thoroughly.  The MRF offers guidelines on how to perform a self check for suspicious moles.  They also list suggested comments to post on your Facebook and Twitter account.  Please check it on their website: http://www.melanoma.org/get-involved/advocacy-initiatives/get-naked.

The Melanoma Foundation of New England will be launching a humorous awareness campaign in May called “The Annoying Mole.”  I don’t want to give out the details until May 1, but trust me that it’s eye-catching, clever and creates awareness.  I would expect no less from the fine folks at MFNE. 

These are just the major campaigns of which I’m aware.  There are many individual walks to support by AIM, MRF, MAM and other melanoma-related organizations.  Some events have a personal touch in honor of a specific individual while others are more wide-spread in their cause.  I encourage each of you to seek out such an event and support it through participation or sponsorship.

It’s campaign season, but no campaign will work without YOU helping to spread the word.  Post, tweet, or simply speak about melanoma and skin cancer.  Spread the word.  Educate!